214 – Toby Brown & Jesse Hohn of Colorado Are Two Dads Who Each Have Children With Shwachman-Diamond Syndrome

Our guests this week are Toby Brown of Colorado Springs and Jesse Hohn of Littleton, CO.

Toby and his wife, Angela Bird, have been married for 15 years and are the proud parents of two children; Kavan (19) and Anabelle (17).

Jesse and his wife, Felima, have been married for 23 years and are the proud parents of three children: Ethan (21), Arianna (18) and Sadie (14).

Four of their five children have Shwachman-Diamond Syndrome (or SDS), a rare genetic disorder that affects many parts of the body, particularly the bone marrow, pancreas and skeletal system.

We learn about how Toby and Jesse’s friendship has evolved as a result of both having children with Shwachman-Diamond Syndrome. We also learn about many of the organizations that have played an instrumental role in the lives of the Brown and Hohn families, including: Camp Sunshine in Maine, Make-A-Wish Foundation, Special Olympics of Colorado, Team Impact and the Shwachman-Diamond Syndrome Foundation.

It’s an uplifting story about two dedicated dads, their commitment to their families and the bonds that have developed as a result of their shared experiences.

Shwachman-Diamond Syndrome –
https://shwachman-diamond.org
https://rarediseases.info.nih.gov/diseases/4863/shwachman-diamond-syndrome

Camp Sunshine – www.CampSunshine.org

Team Impact – https://www.teamimpact.org/state/colorado/

Jesse – Jesse.Hohn@softwareag.com
Toby – tobiaskavan@gmail.com

Jesse – 303-667-2874
Toby – 719-252-5749