116 – Daniel DeFabio Part 2 – Co-Founder of DISORDER: The Rare Disease Film Festival, Reflects On Losing A Son To Menkes Disease

On this Special Fathers Network Dad to Dad podcast It’s the conclusion of host David Hirsch’s conversation with multi media producer, director and marketer, Daniel DeFabio. Daniel and his wife Tina lost their oldest son Lucas (11) just months ago to Menkes Disease, a very rare genetic disorder. Daniel along with fellow SFN Mentor Father Bo Bigelow (SFN D2D #51) are co-founders of DISORDER: The Rare Disease Film Festival. It’s an emotional story that we’ll hear in two parts on the Special Fathers Network Dad to Dad podcast. This is part two. To find out about Menkes Disease go to: https://themenkesfoundation.orgTo find

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115 – Daniel DeFabio Co-Founder of DISORDER: The Rare Disease Film Festival, Reflects On Losing A Son To Menkes Disease

In this Special Fathers Network Dad to Dad podcast host David Hirsch talks with multi media producer, director and marketer, Daniel DeFabio. Daniel and his wife Tina lost their oldest son Lucas (11) just months ago to Menkes Disease, a very rare genetic disorder. Daniel along with fellow SFN Mentor Father Bo Bigelow (SFN D2D #51) are co-founders of DISORDER: The Rare Disease Film Festival. It’s an emotional story that we’ll hear in two parts on the Special Fathers Network Dad to Dad podcast. This is part one. To find out about Menkes Disease go to: https://themenkesfoundation.org To find out about

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031 – Sedona firefighter Kris Kazian on the loss of his daughter, Lexie, and the formation of the Lexie Kazian Foundation.

He’s a fire chief in Sedona Arizona, he had a daughter with special needs who sadly passed away at age two, and through it all he continues in his quest to help people. He’s Kris Kazian and he’s David Hirsch’s guest in this Special Fathers Network Podcast. Kris and his wife Christine formed Helping from Heaven – the Lexie Kazian foundation, a not for profit organization that improves the quality of life for families with special needs kids. It’s a compelling interview and a great listen. Transcript: Dad To Dad 31 – Sedona firefighter Kris Kazian on the loss of

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096 – Hamilton and Broadway Star Miguel Cervantes Recounts the Passing of Daughter, Adelaide, Due to Epilepsy & Infantile Spasms

We are proud to present this very special edition of the Special Fathers Network Dad to Dad Podcast. Host David Hirsch talks to special father Miguel Cervantes. Miguel performed the lead role of Alexander Hamilton for the entire 171 week Chicago run of “Hamilton: An American Musical.” Miguel and his wife, Kelly, son Jackson and Newborn Adelaide, moved to Chicago so Miguel could take on the role of a lifetime. But soon after, Adelaide started having seizures due to a severe form of pediatric epilepsy. Tragically Adelaide passed away at age three. In this Dad to Dad Podcast, Miguel talks to

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093 – Sam Rodriguez Turns Tragic Loss Into Incredible Acts Of Kindness.

From terrible tragedy comes forgiveness, which leads to incredible acts of kindness. On this Special Fathers Network Dad to Dad Podcast, host David Hirsch talks to Special Father Sam Rodriguez. Sam and his wife Stacey have three children. Ben, Emma and Manny, who passed away as a baby. Sam tells his family’s story including the formation of the Manny Rodriguez fund and the 87 random acts of kindness day. That’s all on this Special Fathers Network Dad to Dad podcast. Show Links: Find out about the Manny Rodriguez children’s education’s fund at Facebook.com/mannysfund The Akron Children’s hospital website: https://www.akronchildrens.org The Courageous

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089 – SFN Mentor Fathers: Reflections On The Loss Of A Child With Special Needs

This SFN Podcast is a compilation of excerpts from earlier interviews of SFN Mentor Fathers who each lost a child with special needs. They are listed here in alphabetical order. The number relates to each dad’s podcast: #66 Jerry Castro/Son Jack age 15, #31 Kris Kazian/daughter Lexi age 2, #57 Tim Kuck/son Nathaniel age 4, #64 Shane Lee/daughter Jocelyn age 4 1/2, #37 Matt Mooney/son Elliot age 99 days, #13 Jim Mueller/son Luke 23 and #29 Rooster Rossiter/daughter Ainsley age 12. Not all families are able to perpetuate their child’s memory in the form of a non-profit, but many of these

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066 – Jerry Castro’s son Jack made a profound impact on his family & others before passing away at 15, due to his premature birth.

On this Dad to Dad podcast, host David Hirsch talks with Special Father Jerry Castro, a financial industry veteran and father of 8, including Jack who passed away from complications due to premature birth at age 15. Jerry tells how his son was a real positive influence on the Castro family and that his legacy lives on. That’s all on this Dad to Dad Podcast, presented by the Special Fathers Network.  Transcript: Dad to Dad 66 – Jerry Castro’s son Jack made a profound impact on his family & others before passing away at 15, due to his premature birth.

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065 – John Felageller, Father of a Son With Autism, School Teacher, Blogger and Writer

On this Dad to Dad podcast, host David Hirsch talks with Special Father John Felageller, a 4th grade teacher and father of 11-year-old Christopher, who is autistic. John and his wife Elizabeth have been through some challenging times but have emerged stronger thanks in part to their involvement an evangelical christian church. That’s all on this Dad to Dad Podcast, presented by the Special Fathers Network.  Transcript: Dad to Dad 65 – John Felageller, Father of a Son With Autism, School Teacher, Blogger and Writer John Felageller: Being in the waiting room that they gave us and, and really just

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064 – Shane Lee, father of 5 children, 3 diagnosed with SMA including Jocelyn, who sadly passed away at age 4 1/2

On this Dad to Dad podcast host David Hirsch talks to Shane Lee, a systems administrator and a father of five, including Jocelyn, who sadly passed away at age 4 ½ from complications related to Spinal Muscular Atrophy. We’ll hear the amazing story of the Lee family and their travails and triumphs over SMA on this Dad to Dad Podcast, presented by the Special Fathers Network. Transcript: Dad to Dad 64 – Shane Lee, father of 5 children, 3 diagnosed with SMA including Jocelyn, who sadly passed away at age 4 1/2 Shane Lee: She changed, not only our life,

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057 – Tim Kuck, co-founder of Nathaniel’s Hope, named after his son who passed away at age 4

In this Dad to Dad Podcast we talk with special father, Tim Kuck. Tim not only builds boats – he’s the COO of Regal Marine, but he’s also a special father to three children, including Nathanial who passed away at age 4, due to multiple birth anomalies. In this Dad to Dad podcast, Tim talks of the journey undertaken by he and his wife Marie, including the formation of Nathanial’s Hope, a charity that celebrates kids with special needs. Transcript: Dad to Dad 57 – Tim Kuck, co-founder of Nathaniel’s Hope, named after his son who passed away at age

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