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390 – Tom Sander of Charlotte, NC Father of Three Including a Daughter With Charcot-Marie-Tooth Syndrome A Rare From Of MD

Our guest this week is Tom Sander of Charlotte, NC a territory account manager at Liquidia Corporation, a rare disease bio pharma company, and father of three including a daughter with Charcot-Marie-Tooth Syndrome, a rare form of Muscular Dystrophy.  Tom and his wife, Julie, have married for 22 years and are the proud parents of three children: Will (22), and twins: Jack (18) and Lily (18) who has Charcot-Marie-Tooth Syndrome, which is a type of Muscular Dystrophy that is a spectrum of nerve disorders.     From a very young age Lily has been speaking in public about her condition

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333 – Mazi Keyghobadi of Houston, TX Father Of A Son With Duchenne Muscular Dystrophy & Founder of Hope For Luka

Our guest this week is Mazi Keyghobadi of Houston, TX, a father and outspoken advocate for those with disabilities.  Mazi, who was born and raised in Iran, emigrated to the U.S. as a teenager with his parents and brothers in 2000.  Mazi and his ex-wife, Dunia, were married for nine years, before divorcing in 2021 and are the proud parents of son, Luka (7) who has Duchenne Muscular Dystrophy. Mazi has also formed Hope For Luka, a non-profit dedicated to funding Muscular Dystrophy research with the objective of finding a cure as well as advanced therapies for those impacted by Muscular

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034 – Steve Bundy, father of an autistic child with Muscular Dystrophy, helps parents world wide.

Meet Steve Bundy, author and Vice President of Joni and Friends, providing assistance to families with special needs around the world. Steve is father of two children, Jaron and Caleb who is autistic and has a rare form of Muscular Dystrophy.  Transcript: Dad to Dad 34 – Steve Bundy, father of an autistic child with Muscular Dystrophy, helps parents world wide. Steve Bundy: He’s a bundle of blessing, but a bundle of challenge at the same time, I did not know what to do with all this emotion going on inside me, which is one of the reasons I am

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