369 – Kirby Rabalais of Glenview, IL Founder of 4TITUDE.com & Father Of Two Including One With Pitt Hopkins Syndrome

Our guest this week is Kirby Rabalais of Glenview, IL the Director of Strategic Growth at Truce Software, father of two including one with Pitt Hopkins Syndrome and more recently the founder of 4TITUDE an online community created to support dads raising children with special healthcare needs.     Kirby and his wife, Chelsea, have been married for 8 years and are the proud parents of two boys: Porter (4) and Harley (6), who has Pitt Hopkins Syndrome, a rare genetic disorder that causes developmental, intellectual and physical changes in children. Informed by the experience of being a special needs

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350 – Dana Lange Of Denver, CO, Co-founder & CFO of Bright Life Connections And Father Of Two Including One With Pitt-Hopkins

Our guest this week is Dana Lange, of Denver, CO who does business development for Tuff Shed, is co-founder and CFO of Bright Life Connections, a non-profit and father of two including a daughter with a rare genetic disease. Dana and his wife, Dana, have been married for 34 years and are the proud parents of two daughters: Sarah (28) and Victoria (26) who has Pitt-Hopkins Syndrome, a rare genetic disorder characterized by developmental delay, moderate to severe intellectual disability, among other challenges. The Langes are also co-founders of Bright Life Connections a non-profit that helps loved ones effectively manage

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060 – Martin Cuevas: One of his 4 year old twin daughters has the rare Pitt Hopkins Syndrome

On this Dad to Dad podcast host David Hirsch talks to Martin Cuevas, father of twin 4-year-old girls, one of whom has the incredibly rare Pitt Hopkins syndrome. We’ll hear how Martin and his wife Amy dealt with this devastating news and how close family makes their life much easier. That’s all on this Dad to Dad podcast, presented by the Special Fathers Network. Transcript: Dad to Dad 60 – Martin Cuevas: One of his 4 year old twin daughters has the rare Pitt Hopkins Syndrome Martin Cuevas: And that’s when life changes again. Cause I remember that I believe

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