367 – Sebastien Pelletier of Montreal, Father of 4, 3 with Retinitis Pigmentosa & Featured In the NatGeo Documentary BLINK

Our guest this week is Sebastien Pelletier of Montreal, Canada a financial professional and father of four, three of whom were diagnosed with Retinitis Pigmentosa.  The Pelletier family was also featured in the National Geographic documentary BLINK. Sebestien and his wife, Edith Lemay, have been married for 14 years and are the proud parents of four children: Mia (13), Leo (11), Colin (9) and Laurent (7).  Mia, Colin and Laurent have been diagnosed with Retinitis Pigmentosa, a rare genetic disorder also known as Inherited Retinal Dystrophy (IRD) that causes loss of vision.   There is no known cure for IRD

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317 – Noel Fernandez Collott (82) of Ciego de Avila, Cuba A Retired Baptist Pastor & Disability Advocate, Went Blind at 30

In April 2024, our host David Hirsch traveled to Cuba with Joni & Friends, as one of 12 U.S. volunteers participating in a Wheels For The World Program, to fit and distribute 200+ wheelchairs to youth and adults, who might not otherwise experience mobility.  During his visit, he recorded two interviews with individuals connected to the disability community in Cuba. This is the the second of the two interviews. Toady’s guest is Noel Fernandez Collott of Ciego de Avila, Cuba an 82 year old retired Baptist pastor who led seven churches during his career, who is one of the country’s

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