216 – Sanath Kumar Ramesh of San Jose, CA Father of a Son With SSMD and Co-Founder of the Open Treatment Foundation

Our guest this week is Sanath Kumar Ramesh of San Jose, CA, IL, the father of a son with a super rare disease, a successful tech executive and co-founder of the Open Treatment Foundation. Sanath and his wife, Ramya, have been married for 7 years and are the proud parents of Raghav, who is 3 and was diagnosed with SSMD or Sedaghatiantype Spondylo Metaphyseal Dysplasia an extremely rare progressive disease. Sanath is very open and transparent about his early denial. And we learn about Sanath’s efforts to create the Open Treatment Foundation, a non-profit dedicated to creating a software platform that

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