193 – Miguel Sancho of Larchmont, NY, An Emmy Award Winning TV Producer, Author & Father Of Two, Including a Son With CGD

Our guest this week is Miguel Sancho, of Larchmont, NY a journalist and an Emmy award winning TV producer. Miguel and his wife, Felicia Morton, have been married for 16 years and are the proud parents of two; Lydia (13) and Sebastian (9), who was diagnosed with CGD, Chronic Granulomatous Disease, a rare genetic disorder in which white blood cells called phagocytes are unable to kill certain types of bacteria and fungi. People with CGD are constantly at risk of developing bacterial and fungal diseases that can be life-threatening.

Miguel is also the author of: More Thank You Can Handle: A Rare Disease, A Family In Crisis, And The Cutting-Edge Medicine That Cured The Incurable. Miguel is a gifted story teller and he shares his family’s chaotic, exhausting, funny, heartbreaking nerve-racking journey in a very authentic way. It’s an enlightening and illuminating story all on this SFN Dad To Dad Podcast.

Links:

More Thank You Can Handle: A Rare Disease, A Family In Crisis, And The Cutting-Edge Medicine That Cured The Incurable

CGD Association of America – https://cgdaa.org

Be The Match – https://bethematch.org/

Duke PBMTU Family Support Program – https://dukepbmtfamilysupport.org/

NIH – https://www.nih.gov

Ronald McDonald House – https://www.rmhc.org/

COTA (Children Organ Transplant Association) – https://cota.org/

Immune Deficiency Foundation – https://primaryimmune.org/

Make A Wish Foundation Hudson Valley – https://wish.org/hudson

North Carolina Cord Blood Bank – https://sites.duke.edu/ccbb/

Website – https://www.miguelsancho.net

Email – miguelsancho6464@gmail.com

LinkedIn – https://www.linkedin.com/in/miguel-sancho-b7aa37a/