Our guest this week is Michael Deleon of Pacific, WA, who has an aviation and aerospace background, is the father of four, including two impacted by Urea Cycle Disorder (UCD) and co-founder of the Connecting Families UCD Foundation.
Michael and his wife, Robin, have been married for 23 years and are the proud parents of nine, including five from Robin’s first marriage, two from his first marriage and two children between the two of them.
Sadly, their son, Michael, diagnosed with UCD, passed away in 2000 at age 3 months. And, their daughter, Ariella, who is 19, was also diagnosed with UCD as well.
We learn about Michael’s growing up with a Marine Corps father, their marriages, blended families, and how they have overcome some of the obstacles presented by children with special healthcare needs.
It’s a heartbreaking and heart warming story on today’s SFN Dad To Dad Podcast.
Email – email@example.com
UCD Family Foundation – https://ucdfamily.org
Camp Video – https://q8b.e24.myftpupload.com/wp-content/uploads/2019/11/camp_video_1280x720.mp4
Facebook – https://www.facebook.com/ucdfamilies
Please take the SFN Early Intervention Parent Survey and as a token gift, receive a Great Dad Coin – https://tinyurl.com/5n869y2y