257 – David Ross of Little Hampton, England, A Rare Disease Advocate Reflects On His Cowden Syndrome Diagnosis

Our guest this week is David Ross of Little Hampton, England. David is a rare disease advocate for mens mental health. He plans and hosts valuable international support calls focused on men in the rare disease community. David also has a rare disease himself called Cowden Syndrome, a rare genetic inherited condition. People with Cowden syndrome often have many noncancerous, tumor-like growths. They may also have an increased risk of developing certain cancers. Experts estimate it affects 1 in 200,000 people. The condition often goes underdiagnosed because some healthcare providers may not recognize its symptoms. David reflects on the relationship

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