CTNNB1 Syndrome Archives - 21st Century Dads

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196 – Spela Mirosevic of Ljubljana, Slovenia, Co-Founder Of The CTNNB1 Foundation, Mother of Two, Including A Son With CTNBB1

Our guest this week is Spela Mirosovic. who is a psychotherapist and biopsychologist, working as a researcher at the Medical University Ljubljana. Her work is focused on exploring unmet needs of cancer survivors and teaching mindfulness programs. Spela is also a mother to 2-year-old Urban who was diagnosed with CTNNB1, a rare autosomal genetic disorder that affects an estimated 1 out of 50,000 children worldwide. Spela is also co-founded and president of the CTNNB1 Foundation created to help find a cure for this debilitating syndrome. We’ll hear Spela’s story and much more on this Special Fathers Network Dad to Dad Podcast.

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132 – Casey Parks of Mercer Island, WA Has A Son With CTNNB1 Syndrome, A Rare Genetic Deletion

Our guest on this Special Fathers Network Dad to Dad Podcast is Casey Parks of Mercer Island, WA., who is a deputy prosecuting attorney and father of two children, one of whom, Ford, was diagnosed with CTNNB1 Syndrome, a rare genetic deletion. We’ll hear the Parks family story and all about Casey’s wife Effie who created the Once Upon a Gene Podcast. That’s all on this Special Fathers Network Dad to Dad Podcast. For more information on CTNNB1 Syndrome go to https://www.ctnnb1.org You can check out their Facebook page at: https://www.ctnnb1.org To hear Effie’s podcast and to find out more go to https://effieparks.com Find

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