258 – Ben Mattlin of Los Angeles, CA, Author & Disability Advocate Reflects On Life Over 60 Years With Spinal Muscular Atrophy

Our guest this week is Ben Mattlin of Los Angeles, CA a disability advocate, an author, educator and writer. Ben was born in New York City in 1962 with Spinal Muscular Atrophy (SMA), a congenital muscle weakness. He attended the Walden School, Rudolf Steiner High School, and Harvard University, graduating cum laude. Ben and his wife, Mary, have been married for 34 years and are the proud parents of two adult daughters. Ben is a freelance writer and frequent contributor to Financial Advisor magazine. His writings have appeared in the New York Times, LA Times, and The Washington Post, to

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165 – Chad Lunt of Menlo Park, CA Reflects On Raising A Daughter with Type 1 Spinal Muscular Atrophy

Our guest this week is Chad Lunt of Menlo Park, CA. Chad is married to Cherisse and they have three children including Lucy, age 12, who has Type 1 Spinal Muscular Atrophy. We’ll hear how the Lunt family through their faith, along with help from the Tess Research Foundation, the Gwendolyn Strong Foundation and the miracle drug Spinraza has helped Lucy overcome. And about their hopes for the future in this Special Fathers Network Dad to Dad Podcast. Tess Research Foundation – https://www.tessresearch.org Gwendolyn Strong Foundation – https://nevergiveup.org Email Chad – chad.t.lunt@gmail.com Cherisse’s Instagram: @chertlunt Transcript: Tom Couch: Special, thanks to horizon therapeutics

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064 – Shane Lee, father of 5 children, 3 diagnosed with SMA including Jocelyn, who sadly passed away at age 4 1/2

On this Dad to Dad podcast host David Hirsch talks to Shane Lee, a systems administrator and a father of five, including Jocelyn, who sadly passed away at age 4 ½ from complications related to Spinal Muscular Atrophy. We’ll hear the amazing story of the Lee family and their travails and triumphs over SMA on this Dad to Dad Podcast, presented by the Special Fathers Network. Transcript: Dad to Dad 64 – Shane Lee, father of 5 children, 3 diagnosed with SMA including Jocelyn, who sadly passed away at age 4 1/2 Shane Lee: She changed, not only our life,

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