Dad To Dad 020 – Gene Andrasco Tells of Raising a Daughter With Alternating Hemiplegia a Rare Neurological Disorder.

Meet Gene Andrasco. Gene and his wife Kelley are the proud parents of 2 children, 18 year-old Ryan and 17 year-old Kiley who has been diagnosed with Alternating Hemiplegia of Childhood, or AHC. In this Special Fathers’ Network Podcast, we’ll hear the Andrasco family story, how they’ve dealt with Kiley’s rare neurological disorder and how they’ve tried to help other people who have the same disorder. That’s all on this edition of the Special Fathers Network Podcast. Transcript: Dad To Dad 20 – Gene Andrasco Tells of Raising a Daughter With Alternating Hemiplegia a Rare Neurological Disorder.   Tom Couch:

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Dad to Dad 084- Special Moments

We’ve talked to over 80 Dads in the Dad to Dad podcast, presented by the Special Fathers Network, and in this episode we present a “greatest hits” version of the podcast. You’ll hear many fathers chiming in on why they joined the Special Fathers Network and why being a father of a kid with special needs is so important to them. 

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Dad to Dad 072 – Shane Sondergeld

In this Dad to Dad podcast host David Hirsch talks to Shane Sondergeld, a doctor from Brisbane, Australia. Shane is a father of three children including William, who was diagnosed with 4Q deletion syndrome, a rare genetic disorder. Shane tells the Sondergeld family story and how having a child with a disability is truly a wonder. That’s all on this Dad to Dad podcast. 

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Dad to Dad 071 – John Crowley

Meet John Crowley, a special father of three kids with special needs. Two of those children have a rare genetic disorder called Pompe disease. John and his wife Aileen were told that Meghan and Patrick would not live very long. So, they took matters into their own hands and helped develop a drug that successfully treats the disorder. They formed a successful RX company, Amicus, whose mission is to find treatments for rare diseases. Their story was told in a book, a movie starring Harrison Ford and by the President of the United States in a joint session of congress. And

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Dad to Dad 061 – Jason Lehmbeck

On this Dad to Dad podcast host David Hirsch talks to Jason Lehmbeck a father of three children, including Noah, who was diagnosed with Fox G1, a rare genetic disorder. We’ll hear about Jason’s family and his career, including the founding of team Special X, helping parents get the best care for their children with special needs. That’s all on this Dad to Dad podcast, presented by the Special Fathers Network.

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Dad to Dad 058 – Bob Mendez

On this Dad to Dad podcast we hear the story of a boy who was born with no arms and no legs, who went on to become an inspiring and successful high school varsity football coach. Host David Hirsch talks with Coach Mendez’s father, Bob and hears the story of how young Robert was born with an extremely rare condition that currently affects around 100 people globally.

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Dad to Dad 051- Bo Bigelow

In this Dad to Dad Podcast host David Hirsch talks with special father Bo Bigelow, a lawyer, cofounder of Disorder: A rare film festival and father of two, including Tess, who has a rare disease related to the mutation of the USP 7 gene. Bo is also the host of the podcast Stronger Every Day, documenting his journey as Tess’ parent. He’s our guest today on the Dad to Dad Podcast.

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